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Working to provide connection, comfort, and hope to families who have experienced the unexpected loss of an infant. They provide care packages to those families and a network of connections to others who have experienced a similar loss. A Run for Their Lives! 5K run/walk event is held annually on Mother's Day. Participate in-person in Spearfish, SD, or virtually from anywhere! This event is a great way to honor the memory of a child with a community of supporters. Also works to provide SIDS and safe-sleep awareness and education as well as funding for SIDS-related research. Operations are home-based.

Categories

Sudden Infant Death Syndrome
Health/Disability Related Support Groups
Bereaved Parent Support Groups
Disease/Disability Information
Serving families of children with disabilities and special health needs for 40 years; services include individual assistance, connection to programs at the local, state and national level, and helps parents and schools navigate the special education process. Staff also deliver workshops in-person for groups upon request. Willing to work with parents and professionals to develop and deliver training based on the needs of the group. Workshops/presentations are delivered at no cost to parents. A nominal fee structure is in place for delivery to professional groups.

Categories

Peer Counseling
Special Education Classes/Centers
Home/Community Based Developmental Disabilities Programs
Health/Disability Related Support Groups
Caregiver/Care Receiver Support Groups
Youth/Student Support Groups
Parent Support Groups
Parents of People With Disabilities
Learning Disabilities
Functional Disabilities
Workshops/Symposiums
Disabilities Issues
Intellectual Disabilities
Individual Advocacy
Personal Health Care Advocate Services
Disability Awareness Training
Specialized Information and Referral
Developmental Disabilities
Lupus Connect is an online support where people can share experiences, find emotional support, and practical ways on how to live with the disease. Opportunities are available for people to engage locally and participate in educational events and support groups in person and online.
Trained peer or professionally led groups for caregivers and others dealing with Alzheimer's disease. Many locations offer specialized groups for children, individuals with younger-onset and early-stage Alzheimer's, adult caregivers and others with specific needs.

Categories

Health/Disability Related Support Groups
Caregiver/Care Receiver Support Groups
Alzheimer's Disease
Caregiver Training
Dementia
Supporting people with Parkinson's Disease and their families, care-partners, and the community, through the Annual Awareness Conference, annual walk, information and referrals, educating on the signs and symptoms of Parkinson's Disease, health/wellness services, and support groups.​

Categories

Parkinson's Disease
Private Foundations
Caregiver/Care Receiver Support Groups
Health/Disability Related Support Groups
Disease/Disability Information
The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop educational programs to increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Categories

Health/Disability Related Support Groups
Disease/Disability Information
Turner Syndrome
Providing the following services: - ADVOCACY Teaching people with disabilities the skills needed to advocate for themselves. - INDEPENDENT LIVING SKILLS Providing hands-on training in daily-living skills (cooking, budgeting, organizing and more). - INFORMATION AND REFERRAL Connecting people with resources which can provide needed information to assist individuals to live independently. - PEER COUNSELING Providing opportunities for people with disabilities to engage with others in small or large groups or on an individual basis. - TRANSITION Facilitating the transition of individuals with disabilities from a nursing home to independent living; providing prevention services to individuals who choose to live independently and not in a nursing home or assisted-living setting; and assisting youth to gain skills as they transition into adulthood. - COMMUNITY LIVING SERVICES Assisting individuals in obtaining accessible, affordable housing, transportation, and other community living services. - HOME MODIFICATION ADAPTIVE DEVICES Providing home modifications and adaptive devices, which could include ramps, lift chairs, bathroom modifications, reachers, canes, walkers and more. - TELECOMMUNICATION ADAPTIVE DEVICES Providing adapted telecommunication services, which includes an emergency phone dialer. - AMERICANS WITH DISABILITIES ACT Serving as educators and consultants for contractors, businesses, organizations, and individuals regarding the American with Disabilities Act (ADA) and its guidelines and requirements. - ASSISTIVE DAILY LIVING SERVICES Providing services for people ages 18 and older, with physical disabilities affecting all four limbs, who need assistance with daily living activities. Services include program education and support and personal attendant services. - MONEY FOLLOWS THE PERSON - Providing options for older adults and/or people with disabilities living in nursing homes, hospitals, or long-term care facilities to enable them to successfully return to their homes and communities. Helps individuals identify barriers to living on their own, helps them find a place to live that meets their needs, and helps them find the services and supports they need to continue living independently.

Categories

Personal Alarm Systems
Functional Disabilities
Home Barrier Evaluation/Removal Services
Disability Awareness Training
Independent Living Skills Instruction
Disabilities Issues
Accessibility Related Standards/Legislation Compliance
Home/Community Based Developmental Disabilities Programs
Individual Advocacy
Intellectual Disabilities
Youth/Student Support Groups
Health/Disability Related Support Groups
Issue Advocacy
Transfer Devices
Disease/Disability Information
Assistive Technology Expense Assistance
Specialized Telecommunications Equipment
Supported Living Services for Adults With Disabilities
Speakers/Speakers Bureaus
Specialized Information and Referral
Walking Aids
Provides and facilitates quality education and services for and on behalf of the diabetic community. Services include an annual scholarship, diabetes education, and support group for teen/preteens and parents of children with diabetes.

Categories

Diabetes
Disease/Disability Information
Health/Disability Related Support Groups
The Arthritis Foundation is dedicated to access and advocacy, scientific discovery, help and support, juvenile arthritis. Community and connections, including disease specific information, access to optimal care, education resources, medical treatment, and self-management options.

Categories

Arthritis
Health/Disability Related Support Groups
Disease/Disability Information
Helps families and their support systems find hope and healing after the loss of a child at any age. Provides encouragement, compassion and support through retreats, education and small groups. The groups provide a way to connect with other families who are walking a similar journey. Different from other retreats, Healing Hope hosts only 1 family at a time (in a guest house on on 5-acre property), creating a unique one-on-one experience. The facilitators walk alongside the families, not as counselors, but as peers that have been on a similar journey. Healing Hope also appreciates the opportunity to educate the community by sharing personal stories of grief and life lessons with different groups, churches, schools, etc.

Categories

Bereaved Parent Support Groups
General Bereavement and Grief Support Groups
Peer Counseling
Sudden Infant Death Syndrome
Health/Disability Related Support Groups
Therapeutic Camps
Retreat Centers
- Individual, group, couples, and family counseling for all ages. Issues covered included depression, anxiety, borderline personality disorder, bipolar disorder, anorexia, bulimia, healthy weight loss, grief, attention-deficit / hyperactivity disorder (ADD/ADHD), chronic pain, family separation, divorce, self-destructive behaviors, self-esteem, abuse issues, anger management, and/or any other mental health disorder including PTSD. - Offering neuropsychological and psychological testing, biofeedback, eye movement desensitization (EMDR), and EAP (employee assistance program) services and training. - Group therapy including borderline personality disorder treatment groups including STEPPS, STAIRWAYS, and STRIDES; dialectical behavioral therapy (DBT) group; Best Me Group (social skills group for kids 6-10); and pain management group.

Categories

Pain Management
Family Counseling Agencies
Crime Victim/Witness Counseling
Divorce Counseling
Mental Health Screening
Individual Counseling
Faith Based Counseling
Mental Health Expense Assistance
Family Counseling
General Mental Health Support Groups
Child and Adolescent Psychiatry
Anger Management
Eating Disorders Treatment
Adolescent/Youth Counseling
Psychological Assessment
Chronic Pain
Eye Movement Desensitization and Reprocessing
General Counseling Services
Adult Psychiatry
Dialectical Behavior Therapy
Spouse/Intimate Partner Abuse Counseling
Child Abuse Counseling
Conjoint Counseling
Health/Disability Related Support Groups
Adult Child Sexual Abuse Survivor Counseling
Play Therapy
Bereavement and Grief Counseling
Individual, couples and family counseling/ psychotherapy, forensic testing and psychological testing (personality, intelligence, achievement and neuropsychological). Groups include a grief group, COVID support group, adolescent support group, and chronic pain groups. Offering in-person therapy as well as telehealth.

Categories

COVID-19
Conjoint Counseling
Psychological Assessment
Crime Victim/Witness Counseling
General Counseling Services
Individual Counseling
Family Counseling
Telemental Health
Trauma Focused Cognitive Behavioral Therapy
Health/Disability Related Support Groups
Group Counseling
Pain Management
Private Therapy Practices
Autism Therapy
An educational program applicable for stroke survivors and caregivers. Following the program there is an opportunity for socialization. This group does not meet December, January and February.

Categories

Stroke
Caregiver/Care Receiver Support Groups
Health/Disability Related Support Groups
Bone Marrow Transplant Support Group - For individuals that have gone through or may be undergoing a transplant. Cancer Caregiver Support Program - Open to all caregivers who care for loved one with any type of cancer diagnosis. Cooperative Parenting and Divorce - Parents can learn the skills necessary to minimize difficulties for their children as their roles change from spouses to co-parents. The group is for divorcing parents who have children. Cost is $130.00 for 8 week course or (2) 4 week courses; includes the cost of workbook. Diabetes Support Group - Covers topics and support related to diabetes. Open to the patient and their family/significant other Infant Loss Support Group - 6 week series support group for families who are grieving the death of a child through miscarriage, stillbirth, or infant death. Childbirth (in person or online class), caring for a newborn, breastfeeding, multiple blessings classes Weight Loss Support Group - For people who have had any weight loss procedure or are considering one (both online and in person)

Categories

Weight Loss Surgery Patients
Workshops/Symposiums
Parenting Skills Classes
Diabetes
Breastfeeding Support Programs
Health/Disability Related Support Groups
Medical Information Services
Co-Parenting Workshops
Caregiver/Care Receiver Support Groups
Internet Support Groups
State agency that works with individuals who are blind and or visually impaired in the area of employment and independent living. Services that are available if eligibility is met and or economic need include Diabetic education, Vocational counseling, Job placement, Training in specialized skills of blindness (cane, travel, braille, daily living), Job development, On-the-job training, Guidance and counseling, Job follow-up, Restoration, Assistive technology services, Job retention, Funding for training, Funding for eye surgery (If economic need is met), and Low Vision services (includes a visual examination conducted by a trained specialist in the field of low vision, assessment of visual functioning of individual needs and goals, prescriptions for specialized low vision devices, and individualized training).

Categories

Blind Mobility Aids
Job Search Resource Centers
Day Rehabilitation
Braille and Tactile Aids
Disease/Disability Information
Independent Living Skills Instruction
Job Training Formats
Assistive Technology Expense Assistance
Career Counseling
Supported Employment
State Government Agencies/Departments
Health/Disability Related Support Groups
Vocational Rehabilitation
Blindness
Hospice provides care to those in the advanced stages of an incurable illness and their family, including medical, emotional, and spiritual support. Hospice services can take place in the home, supervised living facility, or nursing home. Also provides open and ongoing bereavement groups to anyone in the community at no charge.
The Pancreatic Cancer Action Network (PanCAN) is focused on fighting pancreatic cancer through research, clinical initiatives, patient services and advocacy. PanCAN holds annual PurpleStride event in Sioux Falls to raise funds for life-changing programs and services that accelerate progress for pancreatic cancer patients. Find out more here.

Categories

Terminal Illness Support Groups
Cancer
Issue Advocacy
Disease/Disability Information
Provides various programs for catastrophically disabled veterans and other people with disabilities. Services include, but are not limited to the following areas: - Service to veterans - Veterans service officer - who is able to assist in obtaining benefits - Advocacy programs for veterans and people with disabilities - Legislation - Peer counseling - for persons with physical disabilities and especially new spinal cord injuries and multiple sclerosis. - Sports and recreational activities - Assists veterans that have physical disabilities with getting involved in sports activities such as bowling, lacrosse, boccia ball, fishing, skiing, trap shooting, and hunting. Also open to individuals with disabilities. - Equipment lending - Technical assistance on the Americans with Disabilities Act (ADA).

Categories

Specialized Information and Referral
Accessibility Related Standards/Legislation Compliance
Veteran Education Benefits
Brain Injury Rehabilitation
Veteran Burial Benefits
Disease/Disability Information
Daily Living Aids
Veteran Benefits Assistance
Disability Awareness Training
Disability Related Sports
Health/Disability Related Support Groups
Peer Counseling
Veteran Membership Organizations
Spinal Cord Injuries
Veterans
Veteran Survivors Benefits
Group is open to individuals with brain injury, their families / caregivers, and professionals.

Categories

Health/Disability Related Support Groups
Brain Disorders
Caregiver/Care Receiver Support Groups
Provides the following: Journey - a special grief group for bereaved adults who have lost a relative, friend, or child through either a natural death, or a sudden, unexpected death. Critical Incident Stress Management groups for any emergency responders, or for traumatized bystanders.

Categories

Critical Incident Stress Debriefing
Health/Disability Related Support Groups
General Bereavement and Grief Support Groups
Bereaved Parent Support Groups
Bereaved Child Support Groups
Providing the following services: - ADVOCACY Teaching people with disabilities the skills needed to advocate for themselves. - INDEPENDENT LIVING SKILLS Providing hands-on training in daily-living skills (cooking, budgeting, organizing and more). - INFORMATION AND REFERRAL Connecting people with resources which can provide needed information to assist individuals to live independently. - PEER COUNSELING Providing opportunities for people with disabilities to engage with others in small or large groups or on an individual basis. - TRANSITION Facilitating the transition of individuals with disabilities from a nursing home to independent living; providing prevention services to individuals who choose to live independently and not in a nursing home or assisted-living setting; and assisting youth to gain skills as they transition into adulthood. - COMMUNITY LIVING SERVICES Assisting individuals in obtaining accessible, affordable housing, transportation, and other community living services. - HOME MODIFICATION ADAPTIVE DEVICES Providing home modifications and adaptive devices, which could include ramps, lift chairs, bathroom modifications, reachers, canes, walkers and more. - TELECOMMUNICATION ADAPTIVE DEVICES Providing adapted telecommunication services, which includes an emergency phone dialer. - AMERICANS WITH DISABILITIES ACT Serving as educators and consultants for contractors, businesses, organizations, and individuals regarding the American with Disabilities Act (ADA) and its guidelines and requirements. - ASSISTIVE DAILY LIVING SERVICES Providing services for people ages 18 and older, with physical disabilities affecting all four limbs, who need assistance with daily living activities. Services include program education and support and personal attendant services. - MONEY FOLLOWS THE PERSON - Providing options for older adults and/or people with disabilities living in nursing homes, hospitals, or long-term care facilities to enable them to successfully return to their homes and communities. Helps individuals identify barriers to living on their own, helps them find a place to live that meets their needs, and helps them find the services and supports they need to continue living independently.

Categories

Personal Alarm Systems
Functional Disabilities
Home Barrier Evaluation/Removal Services
Disability Awareness Training
Independent Living Skills Instruction
Disabilities Issues
Accessibility Related Standards/Legislation Compliance
Home/Community Based Developmental Disabilities Programs
Individual Advocacy
Intellectual Disabilities
Youth/Student Support Groups
Health/Disability Related Support Groups
Issue Advocacy
Transfer Devices
Disease/Disability Information
Assistive Technology Expense Assistance
Specialized Telecommunications Equipment
Supported Living Services for Adults With Disabilities
Speakers/Speakers Bureaus
Specialized Information and Referral
Walking Aids
Provides support, information, and referrals for people living with epilepsy, including possible resources to help with medication costs, support groups, seizure first aid training, find-an-epilepsy-specialist, help finding a seizure safety or detection device and information about services and programs serving the epilepsy community.

Categories

Epilepsy
Disease/Disability Information
Health/Disability Related Support Groups
Specialized Information and Referral
Medical Information Services
Providing quality Dementia education, resources, support, and training for people living with dementia, care partners, and businesses and organizations.

Categories

Health/Disability Related Support Groups
Homemaker Assistance
Caregiver/Care Receiver Support Groups
Families/Friends of People With Alzheimer's Disease and Other Dementias
Families of infants through preschoolers with Down Syndrome are welcome to take part in a private online community and regularly scheduled meetups, including a monthly "Big Event."

Categories

Health/Disability Related Support Groups
Disease/Disability Information
Down Syndrome
Children's Play Groups
HDSA, with its headquarters in New York City, currently has 54 volunteer-led Chapters and Affiliates across the United States. Chapters and Affiliates support HDSA's mission by bringing community-based services, awareness and grassroots fundraising to strengthen resources to families affected by HD.

Categories

Disability Awareness Training
Disease/Disability Information
Case/Care Management
Health/Disability Related Support Groups
Huntington's Disease